On Survivorship

“Survivorship” didn’t exist in the serious illness world 40 years ago. Today, survivorship implies both surviving physical illness as well as moving on emotionally despite the trauma of having had a significant illness. Rob Tufel, LSW, Executive Director...

Empowering Young Adults With Serious Illnesses

If you are a regular reader of my blog, you know I was diagnosed with brain cancer at age 24.  I felt like I was no longer my parents’ child because I had an adult life of my own. But when health crisis hit, hardly anything was left of my adult life—suddenly I was my...

Got Grit?

Grit has become a hot topic in education, but in my opinion, kids facing serious or chronic illness are some of the “grittiest” people around.  Grit includes many different things—courage, resolve, strength of character, mettle, backbone, fortitude, perseverance,...

The Seven C’s of Resilience

We cannot prevent adversity, but adversity can make us more resilient. I’ve adapted the Seven C’s of resilience as described by Kenneth Ginsburg, M.D. in his book, A Parent’s Guide to Building Resilience in Children and Teens: Giving Your Child Roots and Wings (2011,...