by Sheri Brisson | Feb 17, 2016 | Uncategorized
When I was diagnosed with a brain tumor at age 24 there were no Adolescent and Young Adult (AYA) programs. I was treated at an adult hospital and participated in support groups with other cancer patients almost three times my age. You bet I felt like the odd one out....
by Kristi Pikiewicz | Feb 16, 2016 | Uncategorized
Sometimes you feel like sitting down to count the ways your life has twisted and turned away from what you thought it would be. But for most single parents of chronically ill children, now is not the time. There are bills to pay and care to manage. You can be...
by Jeffrey Darst | Feb 10, 2016 | Uncategorized
I met Reid when he was 8 years old. Previously seen by another cardiologist, Reid had a small hole in his heart. It had been there since birth, but would likely never be large enough to hurt him. The hole was very near one of his heart valves, though, so he required...
by Patti Maloney | Feb 3, 2016 | Uncategorized
Children and their families living with chronic illness have lives very different from those of us who are healthy. Every day, activities such as getting up in the morning, washing faces, brushing teeth, getting dressed, going to the bathroom, activities that most of...
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