by Sheri Brisson | Jul 27, 2016 | Uncategorized
You’ve been there and so you understand what other parents of chronically ill children are going through – the worry and fear and difficulties of everyday life. You may also be in a unique position to help. Maybe you’ve even been on the receiving end of help,...
by Garth Sundem | Jul 18, 2016 | Uncategorized
About ten years ago, my family knew a boy I’ll call Evan. Evan had been born with cerebral palsy, which, now at age three, left him unable to walk. He also struggled to communicate and was quick to anger when inability to make himself understood left him...
by Kristi Pikiewicz | Jul 13, 2016 | Uncategorized
How many doctors know about Batten Disease or CANDLE Syndrome or Gaucher disease or Pompe disease? The answer is not many. Even if your ill child has a more common condition, you want to make sure he or she is seen by the best. But it can be hard to know who is the...
by Anna Kozas | Jul 6, 2016 | Uncategorized
We know that kids facing chronic or life-limiting illnesses display incredible resilience and strength. But what about the siblings of these kids? There is a profound shift in these kids’ worldviews – part of their childhood innocence is lost when their world is no...
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